Showing posts with label faith. Show all posts
Showing posts with label faith. Show all posts

Friday, April 8, 2011

A New 4 Letter Word...

OK it's not really 4 letters, but add it to the list in my opinion.

Heart Failure.

Two words put together that I really dislike.  It sounds awful.  It scares me.


Well Ollie has been in the early stages of heart failure for a month.  Last month we were put on Lasix once a day.  Today we saw our Cardio doctor who is fabulous & he upped her to twice a day.  He is seeing more symptoms of heart failure.  Her liver is enlarged and she tugs more when she breathes.  This just means she breathes harder.  Her intake has also went down, but she's still gaining weight.  Awesome.

I personally haven't noticed any differences in her, but I'm around her 24/7.  Her loud breathing is normal to me, I'm used to seeing her eat the same amount even though it's less than it used to be.  It went down when we started adding formula to her breast milk, or that's what I thought caused it.  So...if this is heart failure, it's OK.  I just wish they called it something else...anything else.

While in Mt. Vernon, I also met my blog friend Jamie for lunch.  She was very nice & sweet!  I was thrilled to meet her!  We both lost our minds & forgot to take a picture!  Pray for her to find an awesome job soon!

We go back in May, and he will review her again, and schedule her open heart surgery.  It will be in June probably around my 29th birthday.  When he said those words today I thought Holy crap.  She's 8 weeks old.  Two months fly by so fast.  I'm not ready for this.  I am just not.

Someone may need glasses!

How do I get ready for this?  I want to bawl when I think about it.  How do I kiss her goodbye that day?  How do I stand up straight when they wheel her away?  I know success rates are amazing, but it's really scary.  So many people are so lucky they never have to know what this feels like.  I know there are people out there that still feel sorry for me that Ollie has Down Syndrome.  Honestly I don't care about the DS.  It doesn't matter.  Her surviving this surgery, it's everything.  It matters.  Down Syndrome is nothing compared to open heart surgery in my book.  It's definitely the scariest thing I will ever have to do.  I have strong faith.  I believe with every fiber in me that God & Jesus are real.  I believe she will live through this.  I just don't want to live through that day.  I want to fast forward through that week.


...but I can't.  God is teaching me a lesson.  A lesson in faith.  A lesson on what really matters in life.  A lesson on how to trust and be patient. 


Please continue to pray for our family.  I need the strength, I know I am weak.  Pray for her surgeons & nurses, their hands do God's work.   Don't feel sorry for us, we are living God's plan for our family no matter the outcome...just pray for us.

By the way, Courtney, Christy, Becca - you guys have done this & I can't thank you enough for your support & guidance!  You are great friends & Moms!


Wednesday, February 9, 2011

My last night pregnant...

'Twas the night before Ollie,
and all through the town,
everybody was praying; everybody knelt down
to bless this sweet child
with good health and love
from all of her warriors and God up above.


Tomorrow at 9AM we check into Barnes-Jewish South in St. Louis. 

I will labor while Jade stands by my side...as we silently pray for our baby girl.  We long to see her sweet face, stroke her tiny hands, and kiss her cheeks and forehead.  She will know how much she is loved by so many so soon.

 Please pray for us tonight and tomorrow as we start the real journey with Ollie Faith.  Emotions will be high as we welcome our third child into our family, and as Aubrie and Everett meet their tiny sister.




"You made all the delicate, inner parts of my body and knit me together in my mother’s womb. Thank you for making me so wonderfully complex! Your workmanship is marvelous—how well I know it. You watched me as I was being formed in utter seclusion, as I was woven together in the dark of the womb. You saw me before I was born. Every day of my life was recorded in your book. Every moment was laid out before a single day had passed. How precious are your thoughts about me, O God. They cannot be numbered! I can’t even count them; they outnumber the grains of sand! And when I wake up, you are still with me!"
Psalm 139:13-18

Love never gives up, never loses faith, is always hopeful, and endures through every circumstance.
1 Corinthians 13:7


Ollie is perfection in God's eyes.  He has a plan for her no matter how many chromosomes she has, and no matter what her heart looks like...she is a miracle...and a gift that Jade & I are blessed to love and parent together.

Tuesday, January 4, 2011

Walk by Faith...

My sister Maggie said something recently, and it got me thinking.  Maggie's motto has always been:  For we walk by faith, not by sight (2 Corinthians 5:7).  She in fact wants it tattooed on her foot some day. 

She said she had been thinking about Ollie & realized that her motto in life is walk by faith, not by sight, and perhaps she should start living this motto.  That perhaps she shouldn't believe that Ollie has a heart defect, even though we have seen it.  That she shouldn't believe Ollie has down syndrome, although they say it's most likely the case.  They being the doctors.  She decided that maybe she needed to take her prayers back up that Ollie's heart will be healed & that Ollie will be born without Down Syndrome.  Maggie is young, but for her age she is full of faith.  It's funny to say in the faith world she's a role model to me, being almost 5 years younger.

Ironically, Jade then said almost the same thing to me this weekend.  He's been praying hard that Ollie will not have down syndrome, that we will just have the heart defect.  It is the one thing he's been asking for after we heard a particular message in church.  Now he's thinking he gave up on her heart too soon.  That miracles do happen and we need to keep praying about her heart and down syndrome for the next 6 weeks or so until she arrives.  That God is still in control, and in the miracle making business - if it is his will. 

This got me thinking hard.  Walking by faith, and not by sight when you see the hole in your babies heart isn't easy for me to do.  I'm a controlling person, and I can't believe how hard this is for me.  Even with faith in the lord & that Jesus is my personal savior - I for some reason don't want to give this up to him.  So...I sat down and read a book - yes an entire book.  In this book it talked about faith often.  It listed several bible verses about faith, then the author's thoughts about faith - these lines kept jumping out at me from the page.  Almost as if God was speaking to me through this book.  I finished the entire book & prayed & read in the bible for awhile.  I am still praying that I can fully give up myself to the Lord - that I can truly walk by faith when it regards my daughter. 

My Mom you see has been at this approach since day 1.  I honestly thought she was crazy for some time.  I was concerned about her & even talked to my Dad about it.  I kept thinking she was setting herself up for disappointment because we have seen the hole in Ollie's heart with our own eyes, and we have seen all these markers for down syndrome.  I was afraid she was building this up so she would avoid the heartbreak again that she had with my brothers.  I was afraid she'd crumble.  Dad told me that she has more faith than I could ever imagine & this is how she chooses to handle Ollie in her prayers.  So I left it alone that she could handle it in her manner & I mine.  Now I am realizing that my Mom has impressive faith.

I'm going to try hard, super hard to walk by faith.  I do honestly believe without a doubt that if it is God's will, he will heal her heart and she won't have down syndrome.  I don't doubt that for one second, but walking by faith & believing he is going to perform a  miracle on her - well there I struggle.  I don't know why I would get that miracle.  So I'm going to keep praying - for myself for my faith to explode.  It's probably the only resolution I have this year.  I am also going to pray for her little heart & God's will to move in her little body!

Below are some verses I found when looking up more about Faith.  This blog has transformed so much in a year.  One year ago I would not have ever posted so much about the Bible on my blog - I guess I used to be embarrassed - shame on me!  Now the decorating, home projects - they really don't mean much, although I do have some things to show you soon because I'm always up to something.  Now if I can just help one person with my blog - if one single person is where Jade & I were in October - if they stumble upon this and they get a tiny glimmer of help or my faith gives them hope - I would be thrilled. 

So friends keep on praying for Miss Ollie - whose middle name is now Faith - it only seems appropriate don't you think!!

Heb 11:1  Now faith is the substance of things hoped for, the evidence of things not seen.

Rom 10:17  Faith comes by hearing the message, and the message is heard through the word of Christ.

Heb 11:6  Without faith it is impossible to please God....

Heb 10:32,35-39 ... in the face of suffering... do not throw away your confidence; it will be richly rewarded. You need to persevere so that when you have done the will of God, you will receive what he has promised. For in just a little while, "He who is coming will come and will not delay. But my righteous one will live by faith. And if he shrinks back, I will not be pleased with him." But we are not of those who shrink back and are destroyed, but of those who believe and are saved.

Luke 17:5  The apostles said to the Lord, "Increase our faith!" He replied, "If you have faith as small as a mustard seed, you can say to this mulberry tree, 'Be uprooted and planted in the sea,' and it will obey you."

Corinthians 2:5-7   For we walk by faith, not by sight

Today I got a very touching e-mail. A group of about 15 women I have never met in Southern Illinois have decided to pray for baby Ollie daily until she arrives. My due date is February 17th which would be in 6 weeks, but I’m guessing they induce me around the 10th which puts me at 39 weeks – the OB doctor talked to us about this last time. We go tomorrow to St. Louis for multiple appointments & we are hoping to find out more about a set induction date tomorrow.

These women are praying in particular for Ollie to be born completely healthy (God is still in the miracle business - so a healthy heart & no down syndrome) & for strength for our family because some days are tougher than others & we are facing a lot, but doing well. They are praying daily at 9 AM and 9 PM. I just wanted to spread the news to those thinking about us.  If you would like to join in at those times or whenever you can until she arrives we would greatly appreciate it. Also, if you are a part of any prayer chains, bible groups, or know more prayer warriors please spread this to them as well.


God Bless!!



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